The Clinical Side of VEDS
Let’s get technical! I’m going to give a very broad overview of Vascular Ehlers-Danlos Syndrome (VEDS). I had never heard of it when I was diagnosed at the age of 33. It’s a rarity even to medical professionals, so I know it’s new to many of you. VEDS is an incurable genetic condition affecting the body’s connective tissue. The VEDS body produces defective collagen, which is the most abundant protein and serves as the building blocks for the entire body making up the skin, muscles, ligaments, tendons, large organs, blood vessels, and arteries. Broken building blocks mean a weakened structure throughout…read more
The Personal Side of VEDS
When I first got my diagnosis in 2011, we were dealing with the after-effects of a traumatic c-section, bowel issues, and aneurysms, so we had little time to process the long-term effects of the disease. In very simple terms, I’m at risk for intestinal, organ, or arterial ruptures. Any time. Any where. Without warning. So caution and hyper-awareness of my body are a top priority…read more
